Medical and Life Update

SAMSUNGToday, my lab results came in from the Alegent Creighton Clinic on West Broadway where I see a new physician who is just amazing! The results are just awesome! I am doing very well for a post-kidney transplant Cystinosis patient.

Medically, I am doing good. I gained weight so I am working on loosing that. I keep having headaches but mostly I am doing good. Although, as a Cystinosis patient I must watch my Thyroid and other systems since the Cystinosis affects the entire body. I am doing more walking again. I was additionally more depressed so I think that effected my weight a bit too.

My life update, I just went to my grandmother’s today, and I plan to stay here for a couple days. I plan to help her out with some house work and just visiting with her since most of the family don’t spend any time with her. I am going on a break from most of my political organizing for the rest of the year. I am doing this because I am trying to financially (I live on Disability) save more of my money instead of spending it out travel expenses for the LB380 (Second Parent Adoption) campaign. In addition, I need to spend more time focusing on myself. I need to figure a lot of stuff out and work with my medical insurance to cover the new form of Cystagon and get my insurance to pay for the eye drops that were just approved by the FDA. I need to prepare for the next chapter of my life. The next chapter of my life, should include going back to college. I need to finish my degree in Psychology and Political Science so I can get a job at the University of Iowa Hospitals and Clinics and hopefully work in the transplant department. My goal is to move to Iowa City and go to the University of Iowa for my masters degree in Psychology and Political Science. I also hope to help out on political campaigns while in Iowa City.

US-News-rankings-2013Here are those results:

  • WBC (White Blood Cell): 6.7
  • RBC (Red Blood Cell): 4.98
  • Hemoglobin: 13.9
  • Hematocrit: 43.3
  • Platelet Count: 219
  • Neutrophils: 72
  • Lymphs%: 18
  • Monocytes%: 7
  • Eosinophils%: 3
  • Basophils%: 1
  • TSH: 1.560
  • Glucose: 92
  • BUN: 8
  • Creatinine: 1.0
  • Sodium: 138
  • Potassium: 4.1
  • Chloride: 103
  • Calcium: 9.5
  • Protein: 7.9
  • Albumin: 4.3
  • Alkaline Phosphatase: 111

Clarification: All those results are great.

Now, here is all the medications I am on including Vitamins and Sinus spray:

  1. 970200_581143018593377_1471588441_nCystagon (LTD DIST) 50 mg cap. 11 caps 4x daily
  2. Mycophenolate 500 mg tab. 1 tab 2x daily
  3. Rapamune 1 mg tab. 4 tabs 1x daily
  4. Prednisone 5 mg tab. 1 tab 1x daily
  5. Phospha 250 Neutral tab. 1 tab 2x daily
  6. Levocarnitine 10% oral solution. 2 ml 4x daily
  7. Cysteaminine Ey Drops. 1 drop each eye every hour while awake
  8. Sulfamethoxale – TMP SS tab. 1 tab every monday, wednesday, friday
  9. Ondansetron HCL 4 mg tab. 1 tab every 8 hours as needed
  10. Sertraline HCL 50 mg tab. 1 tab 1x daily
  11. Sumatriptan SUCC 100 mg tab. 1 tab as needed
  12. Clindamycin 300 mg cap. 4 caps 1 hour before dental appointment
  13. Docusate Sodium 100 mg tab. 1 tab 3x daily as needed
  14. Sennosides 8.6 mg tab. 1 tab 2x daily as needed
  15. Vitamin D 2000iu ta. 1 tab 1x daily
  16. Magnesium 500 mg tab. 1 tab 2x daily
  17. MutiVites Vitamin Gummies. 2 gummies 1x daily
  18. Acetaminophen 325 mg tab. 2 tabs every 6 hours as needed
  19. ProAir HFA 90 mcg inhaler. 2 puffs every 6 hours as needed
  20. Oxymetazoline HCI 0.05% Mist. 2 sprays each nostril every 12 hours as needed

 

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