I am a Socialist

I am a socialist. I believe in socialism because I believe in equality for all. I am a socialist because I believe it should be common sense that we have democracy in the workplace and in schools. I am a socialist because I believe in basic needs, including housing, food, healthcare, education and energy and I believe they should be affordable to all and not the means for profit.  I am a socialist because I believe in full federal equality for LGBTQIA individuals, including amending the Civil Rights Act of 1964 to include “sexual orientation” and “gender identity.” I am a socialist because I believe that gender is a social construct and the government should remove gender/sex from government forms, state IDs/licenses, and voter registration. I am a socialist because I believe in universal access to child care, family leave, paid sick and vacation. I am a socialist because I believe in a universal basic income and a living wage of at least $20 per hour.

We need socialism because capitalism is failing. The U.S. is failing its citizens when it comes to healthcare. Even with the ACA, many Americans cannot afford the copayment, deductibles, payroll deductions and denial. Many people skip their prescription medications and avoid going to the doctor because they do not have the money to cover the deductibles. Further, of the 1.4 million Americans who file for medical bankruptcy each year, 75 percent have health insurance.

The Affordable Care Act (ACA), did help and did increase the number of insured Americans. Unfortunately, according to the Congressional Budget Office, by 2023 31 million people will still lack coverage. However, having insurance does not solve all the problems because having insurance does not guarantee access to care or protection from financial ruin due to health care costs.

Just look at this example, one of my medications, Procysbi, costs over $72,000 for a 30-day supply. This is a 3,000% increase compared to the original drug, Cystagon.

Not everyone is failing with capitalism. Corporate American is doing great with capitalism, they are even providing slave labor to foreign workers all over the world. Furthermore, wages are stagnant or falling, costs of child care and college continue to rise exponentially, and full-time jobs are hard to come by.

Yet, political pundits are surprised when they learn that the American people do not support capitalism. According to an April 2016 Harvard University poll, 51 percent of Americans between 18 and 29 reject capitalism and 33 percent support socialism.

We need socialism because there should be no profit in health care. We need a health care system that works for all. We need a system where all people can get the care they need to maintain and improve their health when they need it regardless of age, color, creed, economic status, ethnic identity, familial status, gender identity/expression, genetic information, marital status, national origin, physical disability, race, religion, sex, and sexual orientation.

That system to solve all of these problems associated with health care is single payer health care and because the federal government appears unable to act, the State of Iowa must take a stand and protect their people.

We need socialism because no one should go into debt while trying to get an education. We need tuition free and debt free college. We need an education system that is a right to every citizen.

Go here to fight for single payer health care: IASinglePayer

Red and Black!


How Do You Live With An “Orphan” Disease?

Have you ever wondered what it is like to live with an “orphan” disease like cystinosis?


It is difficult but it is an amazing journey. The following information will help you understand what a person living with cystinosis must go through while growing up.

Cystinosis is a rare disease that primarily affects children. It is a rare genetic disorder in which continuous cellular accumulation of the amino acid cystine rises to toxic levels, resulting in irreversible tissue and organ damage if left untreated even for a short time. Cystine crystals accumulate in the kidneys, eyes, liver, muscles, pancreas, thyroid, brain, and white blood cells. Without treatments, children with the disorder develop end stage kidney failure at approximately age nine.

Cystinosis is treated symptomatically and ongoing, which makes it possible for patients (us) to live longer lives. Consistent care is essentialeven when the patient (we) look or feel fine. The disease does not rest. If a patient delay, miss, or stop taking medicine, cystine levels can rise very quickly. The damage caused by toxic levels of cystine cannot be reversed. *A kidney transplant is not a cure for cystinosis.*

MYN90450The following are ways cystinosis is treated:

  • High intake of fluids and electrolytes to prevent excessive loss of water from the body.
  • Sodium bicarbonate, sodium citrate, and potassium citrate may be administered to maintain the normal electrolyte balance.
  • Phosphates and vitamin D are required to correct the impaired uptake of phosphate into the kidneys and to prevent rickets.
  • Cystagon or Procysbi (cysteamine bitartrate)cystaran_374803
  • Cystaran (cysteamine eye drops)
  • Kidney transplantation

The disease first affects the kidneys and it is a primary concern to ensure they last as long as possible.



The kidneys are fist-sized organs, shaped like beans. They act as filters to clean waste (what’s left over from breaking down from food and your body’s other activities) from the blood. In addition to removing wastes from the bloodstream, the kidneys also make and regulate hormones and chemicals in the body. When the kidneys are not working correctly, the body can develop several problems, including: fatigue, bone problems, sleep problems, and anemia.

Dialysis may be needed if a donor kidney is not available, or if a kidney transplant fails. Dialysis serves as an artificial filtering system that mimics a person’s kidneys by removing waste from the blood.

microbeadsCystinosis patients (we) are now living longer lives because of the new treatments and advancements in medicine. Living longer means that cystinosis patients must transition from pediatric care to adult care. As a patient myself this is excellent news because we had have only a 20 year life span, now we have a 50 year life span. Once they become adolescents they must learn about treatment options, know their medications and side effects from those medications.

C._Everett_Koop,_1980sThis period is known as “transitioning,” which was inspired by Surgeon General C. Everett Koop. He described it as the “one major issue” for chronically ill adolescents that had not been adequately addressed by the healthcare system.

A consensus statement from pediatric and adolescent health professionals in 2002, in the journal Pediatrics defined the goal of transition:

“To maximize lifelong functioning and potential through the provision of high-quality, developmentally appropriate healthcare services that continue uninterrupted as the individual moves from adolescence to adulthood.”

There are many factors that affect the overall well-being of adolescents with cystinosis:

  • Medical/physical concerns
  • Psychosocial functioning
  • Long-term disabilities
  • Multiple hospitalizations
  • Treatment compliance
  • Comorbidities such as gastrointestinal complications with possible swallowing problems.
  • Hypertension (elevated blood pressure)
  • Photophobia (lights hurting the eyes) due to corneal crystalscystinosis
  • Visual impairment due to retinopathy (involvements of the back of the eyes)
  • Metabolic bone disease with skeletal deformities as consequences of rickets
  • Persistent polyuria (large urine output) in pre- and post- transplant patients
  • Endocrine involvement including diabetes and hypothyroidism (low thyroid function)
  • Various degrees of myopathy (muscle involvement) affecting strength
  • Delayed puberty (sexual maturation)
  • Male hypogonadism (low male hormone levels) and infertility (inability to conceive)


The transition process that Koop spoke about is broken down into three stages by their age. Early adolescence (12-15), late adolescence (15-18), and young and “emerging” adults (19-25).

cysteamine-bitartrate-figure-3In early adolescence, cystinosis patients (we) begin understanding their medications and taking responsibility. They should recognize what their medications look like and should be able to tell their parents and healthcare team the following:

  • Name of each medication
  • Dosage and schedule for taking each medication3aab3b39-52b6-4a79-9a5c-7baa7574f24f-03
  • Purpose of each medication
  • Side effects of each medication

Cystinosis patients (we) have the unique role of being their own advocates, and at this age they should learn how to self-advocate. Advocating for themselves will be crucial as they face many circumstances where they need to stand up for themselves in the healthcare field and in general. Parents should encourage children to practice self-advocacy while still supporting them in their decisions.

Often children and young adults with chronic illnesses may be hidden victims of bullying.

These are some potential bullying warning signs that we all should look for:

  • Loss of interest in school and extracurricular activities
  • Frequent complaints of illness to avoid attending school
  • Sudden decrease in academic performance
  • Few or no friends with whom he/she spends time with
  • Unexplained bruises, scratches, and cuts
  • Fear of going to school, riding the bus, walking to school, or taking part in organized activities with peers
  • A preference for a long or illogical route to school
  • Increased moodiness, sadness, or depression
  • Loss of appetite
  • Trouble sleeping
  • Anxiety or low self-esteem

Going to school with any illness can be daunting, especially with a serious “orphan” disorder. Cystinosis patients and their parents should not be intimidated by the “educational professional,” and the school administrators should NOT be intimidated by the parent! Patients and parents should NOT let teachers, support staff, or administrators tell them that a request is “impossible.”

Navigating the school system can be difficult living with cystinosis, and communication is key for parents and patients. Parents should get to know key individuals – including a child’s principal, guidance counselor, nurse, psychologist, social worker, AND ALL teachers (including those who teach special classes like art and physical education) as the school year begins. Parents should provide the school with packet of information about cystinosis.

Honesty is the best policy. Not sharing information does not allow understanding, and can create problems. Encourage school staff to ask questions. Urge them to ask questions, both academic and medical.

Cystinosis patients (we) are constantly faced with difficult situations, therefore young patients need to build a self-confidence. Building self-confidence is imperative for them. Having a self-confidence can help patients think positively and deal better with the daily stresses of having cystinosis.

Here are some ways that can be used to help build self-confidence:

  • Set standards for independence
  • Focus on building confidence, resilience, and strong communication skills
  • Recognize their child for doing a good deed, doing well at school, or completing a goal.
  • Point out their child’s strengths
  • Applaud their child’s efforts to improve on an activity he or she enjoys (even if it’s not the parent’s favorite!)
  • Listen to their teen when they speak and use open-ended questions rather than ones that require only a yes/no response

During transition, these young patients should spend a few minutes talking privately with their healthcare team at the beginning or end of each visit. This can help them feel more in control of their life and the cystinosis. They should start siting in (or picking up the phone) when their parents are making medical appointments or calling for prescription refills.

Sample Questions to Ask Your Medical Team

  • At what age does transition happen at this hospital?
  • Are there teen- or young adult- specific clinics?
  • Who will help coordinate the transition?
  • Do you have adult specialists that you recommend?
  • Why do you recommend them over others?
  • where are specialists located?
  • How will we meet them?
  • Do we need referrals?
  • Are there adult physicians/specialists who are knowledgeable about cystinosis?

Cystinosis patients face a unique set of stressors.

The disease can interfere with the patient’s comfort in moving toward independence and their parents may be resistant to a patient’s efforts to become independent.

  • In these situations the parent’s job is to provide information and resources to help adolescents think and live as independent adults.
  • One difficult, however necessary job of the parent is to seek a balance between “normal” adolescence and the unique healthcare needs that cystinosis patients (we) face.
  • Parents should start involving their teens in all health-related discussions (treatment choices and current concerns about their illness).
  • Work together, the patient and parent to teach self-care skills related to the patient’s illness (from medications to calling the pharmacy or scheduling doctor’s appointments).
  • Work on the development of coping skills to address problems or concerns that may arise related cystinosis.
    • Talking to friends about cystinosis
    • Participating in support groups
    • Expressing frustration or anger when needed
    • Using humor to defuse frustration or anger
    • Researching a problem
    • Participating in social support or religious activities

Medications are vital to cystinosis patients (our) survival. If they miss a dose of cysteamine or anti-rejection drugs, it could damage their health. Over time this can lead to the progression of the disease and rejection of the transplanted kidney.

  • Think about how much privacy is important to them when taking their medications
  • The patients need to speak honestly with their parents or their healthcare team if there is a problem with taking medications – whether because of side effects, a busy schedule, or sheer frustration. There may be options that could make things easier.
  • Parents need to understand that their teen will be taking many medications, to control cystinosis and to protect a kidney transplant.
  • If a cystinosis patient illness reaches an unstable state due to “nonadherence with treatment recommendations,” parents and healthcare teams should aim for discussion of what’s happening rather than arguing or punishment. The parent and healthcare team should decrease their frustration and replace it with support. 
  • Both the parent and the healthcare team should be honest about the results of not adhering to medication schedules, but avoid scare tactics. 
  • Communication is vital between the parent and patient. Talk about what the nonadherence is really about – taking medications can be a burden, it may interfere with social activities, the side effects may be too troublesome, etc.
  • Parents should know that not taking medications can also be a way of “acting out,” which other teens might express with skipping school, using drugs or alcohol. This can be a way of expressing rebellion or a way of trying to feel in control. The parent and patient must work together as a family and with the healthcare professionals to find a treatment plan that works for the young patient.


Cystinosis patients (we) must learn coping skills to deal with the side effects of Cystagon or Procysbi. These patients (us) cannot stop taking these medications. Cysteamine bitartrate is the lifeline for individuals with cystinosis. Cystinosis patients may often feel many side effects from their medications, especially the cysteamine bitartrate. As these patients reach adolescence and young adulthood, it becomes frequently tempting for them (myself included) to skip taking the medication due to the side effects, social concerns, and self-conscious feelings from the drug’s odor, and complications such as gastrointestinal distress.


Cysteamine bitartarte is vital, without it , the cystinosis will take its natural course, and more complications of the disease can happen at an accelerated rate. Patients may not be immediately aware of the damage to their health.

Living with any illness is difficult, being a teenager as well, makes life even more so. If a teen or young adult has five or more of these experiences, he or she may need more intense and immediate support than just talking with a friend or family member:

  • Feeling sad all or most of the time
  • Fast to get angry
  • Lose of interest in activities that were formerly enjoyable
  • Sleeping too much or too little
  • Missing school frequently or drop in grades
  • Worrying about being rejected or not doing something well
  • Feeling anxious and shaky
  • Feeling worthless or guilty
  • Feeling isolated; avoiding or not having friends
  • Having problems concentrating
  • Thinking about running away from home
  • Deliberately skipping medications

Parents and or patients should talk to your healthcare team and seek help if:

  • The patient seems overwhelmed with emotional issues related to living with a chronic illness. This could take the form of extreme sadness/depression, anger, or isolation/withdrawal
  • A pattern of “nonadherence,” or risky health consequences occur. Not taking Cystagon or Procysbi can result in the development of cystine buildup in all organs over time. Not taking immunosuppressants can result in acute rejection of a kidney very quickly, or cause a slow decline in kidney function due to chronic rejection. Sabotaging their health can become a powerful way to get attention or act out.

Young cystinosis patients must grow up learning all of the experiences of being a teen while they must learn how to take care of their health. 

  • These patients should spend a day or weekend independently preparing and taking medications and eye drops – without parents reminding them. Set up their own medication box for the week.
  • Parents should work with patients to start exploring academic and work interests that they want to pursue after high school.
  • Patients should keep a journal or write when they feel strongly about something. Write an essay about the best and most challenging things they have experienced (which might have nothing to do with cystinosis).
  • Patients should practice and try out different ways to tell “their” story may be useful for college and scholarship applications, or enable them to be an advocate for a cause they care about.

As cystinosis patients (we) become adults, they face many new challenges such as: furthering their education, exploring career paths, forming relations, experiencing different living situations, and dealing with car, home, and the big one health insurance.

Some call this age group young or “emerging” adults (18-25).

Jeffrey-Arnett-150“Emerging” adulthood – coined by researcher Jeffrey Arnett, Professor in the Department of Psychology at Clark University in Massachusetts, which used the term to describe the experience of 18-30 year olds. They are sometimes called millennials. They are unique, because in the United States and Europe, the years were once  thought of as a time of settling down, starting jobs, and building families; now it is a time of extended exploration, trying out educational and career paths, traveling, forming relationships, and experiencing individual living situations.

Consequently, growing up with cystinosis, young adults usually are eager to become independent and might be anxious about what lies ahead for them. They may also be facing challenges that their friends or healthy family members are not experiencing.

These young patients:

  • Negotiating what it means to them to be independent
  • Allowing friends and family to provide help to support when needed
  • Traveling, studying, moving away from home
  • Making educational and work choices
  • Taking complete (or more complete) responsibility for their health and health care

The following is a couple quotes by some cystinosis patients.

“Generally I’m pretty happy with my life . . . but it’s so much harder than anyone realizes.”

“It [cystinosis] totally affects how I feel about myself – for the best. I am proud of all that I do in spite of cystinosis. It gives me a story of triumph and hopes to share with others.”

Relationships and dating are even  bit more unique for individuals with cystinosis.

Just listen to these patients.

“An important issue is the smell of Cystagon. As I’ve talked with some of the young adults in our community. I’ve found more than one person who has stopped taking Cystagon when embarking on a serious relationship. You cannot talk about dating without approaching the subject of close contact, kissing, etc. and Cystagon. Quite frankly, if you’re with someone who is going to make a stink (no pun intended!) about your lifeline, he or she isn’t worth it.”

“I usually shared on the second or third date. My feelings is that if he doesn’t stick around, then he is not the kind of person I would want to be with anyway. One time, I waited too long, and they guy bolted shortly after I told him. Although he didn’t admit it, I felt that was why. By then, I was more attached, so naturally it hurt more.”

The Future

Sexual Reproductive Health and Cystinosis

by Dr. William A. Gahl and Dr. Galina Nesterova, National Institutes of Health (NIH)

Adolescents and young adults with cystinosis are faced with a challenge of sexual maturity and reproduction. If cystinosis is untreated people nearly always exhibit late sexual maturation (puberty).

Cystinotic males reach puberty at about 16-17 years old, and may demonstrate a primary decrease in testosterone (the hormones produced by the testes) due to cystine accumulation in the testes. Poorly treated males exhibit high levels of luteinizing hormone and follicle stimulating hormone (other hormones needed for sexual maturation), as compensation for the low production of testosterone by the testes. Male patients benefits from testosterone supplements to restore secondary sexual characteristics such as facial hair growth, muscle mas, and increase in testicular (testes) size.

The ability to have an erection (ability to have sexual life) apparently remains intact, no cystinosis patient is known to have fathered a child.

Cystinotic females poorly treated reach puberty at about 14-15 years old. Ovulatory cycles and gonadal endocrine parameters are normal in females, and several successful pregnancies and deliveries have occurred in women with cystinosis; the children have all been completely normal.

It is recommended that women with cystinosis withhold cysteamine therapy when trying to conceive or during pregnancy. Currently, there is no data o the teratogenic effects (risk of birth defects) of cysteamine in humans.

*Adapted by Mika J. Covington to fit word limit.

Cystinosis patients face challenges when it comes to education.

They have many doctor’s appointments, lab visits, and sometimes hospitalizations all forcing them to miss school.

The Rehabilitation Act of 1973 (Section 504) and the Americans with Disabilities Act of 1990 (Title II) prohibits discrimination based on disability. “Disability” can include “invisible” conditions like cystinosis, and includes more “obvious” disabilities such as vision problems, learning disabilities, difficulty walking, etc.

Universities and colleges are required to have an Office for Students with Disabilities (actual names will vary). Cystinosis patients should consider documenting their health condition with their educational institution. However, if the patient doesn’t document their healthy condition ahead of time, their professors and administration will not be required by law to make special exceptions.

Additionally, new federal regulations, require insurance offered by universities and colleges to offer the same coverage as commercial plans – such as not imposing limits on lifetime costs or pre-existing conditions.

Go here for more information: http://www.ed.gov/ocr/transition.html

Employment and Insurance with Cystinosis

Cystinotic individuals entering and who are in the workforce may experience a variety of issues and concerns. Career choices for young adults with cystinosis should be based on their intellect, ability, interests, and life goals. These individuals (us) are not limited in choice of employment and work in a variety of professional and technical jobs.

How should cystinotic individuals handle interviews? First, they should understand all the state and federal laws related to questions that the employer can legally ask (www.ada.gov or www.wwoc.gov).

Should an applicant disclose information regarding their cystinosis at the interview? Usually, no. Sharing this information about their cystinosis can put both the interviewee and the employer in a difficult position. The decision to hire should be based primarily on the individual’s ability to perform the tasks of the job.

Health Insurance

Health insurance is confusing for most people, especially for people dealing with a serious illness. Cystinotic individuals will need to have a vast knowledge about health insurance. They should have the answers to these questions:

  • Does the plan cover your prescriptions (anti-rejection, Cystagon, Procysbi)?
  • Are your medications (anti-rejection, Cystagon, Procysbi) on the “formulary” or must they be ordered through as specialty pharmacy? Will you have to pay out-of-pocket for specialty pharmacy orders?
  • Is there a mail-order option? Cystagon, Procysbi, and Cystaran will likely require extra steps.
  • Does the plan permit you to see the providers you already have established relationships with and allow you to be hospitalized at the medical center of your choice ?
  • What does it cost to go “out-of-network”?
  • For medications that may not be FDA approved, what will be the cost to you?


Cystinosis patients should understand the basics of the many laws that assist them in the workplace and with their health insurance. Go here for additional information: www.younginvincible.org

The following are brief descriptions of some of those laws:

  • Section 2714 of the Affordable Care Act of 2010 (ACA aka Obamacare), requires all plans offering dependent coverage to allow individuals up to age 26 to remain on their parent’s health insurance.
  • Section 2301 of the Reconciliation Act of 2010, includes a requirement for existing health insurance plans to provide coverage for adult children up to age 26 and eliminates the requirement that adult children be unmarried. The extension also means that adult children do not have to be in college full-time to maintain under their parent’s coverage. The following is a resource for information is the Commonwealth Fund (www.commonwealth.org).
  • Consolidated Omnibus Budget Reconcilation Act (COBRA) of 1986, allows you to continue your insurance coverage for up to 18 months through your employer if your job is terminated or your hours are reduced (www.cobrainsurance.com).
  • Americans with Disabilities Act (ADA) of 1990, requires that employers to provide reasonable accommodations for individuals with disabilities who can perform the essential functions of the job (www.ada.gov).
  • Ticket to Work and Work Incentives Improvement Act. If you receive Social Security Income or Social Security Disability Benefits, This law may allow them to work and continue some of their insurance benefits. It also has a voucher system, where they can gain rehabilitation and other services to assist them in getting a job (www.ssa.gov).


*This blog post is dedicated to all those fighting “orphan” diseases including my sister Mary Covington, who like myself lives with cystinosis.


This blog post used information from an amazing resource, “Bridge to the Future,” a transition guide for teens and young adults with cystinosis and their families, created by the Cystinosis Research Network. Additional information used within this blog post came from the website http://www.knowcystinosis.com. I, Mika J. Covington, take no credit for collecting and putting together any of the information herein. However, I, Mika J. Covington, do take credit for the addition of my opinions and summing up some of the information here within this blog post from the sources listed above.

Obamacare (Affordable Care Act) is working

tumblr_m6cqwlbVTa1qzhkvho1_500Obamacare is working, except the Republicans and Republican control media don’t want you to know that. Media outlets such as Fox continue to censor all positive stories about how Obamacare is working and helping millions of Americans.

#getcoverdNearly 365,000 people in the country has already bought private health insurance plans through the Marketplace and more than 800,000 people are able to finally get health insurance through the Medicaid expansion in the states. And thousands of Americans are signing up for healthcare insurance everyday. (WhiteHouse)

Because of the healthcare law, up to 105 million Americans can’t be subject to lifetime caps. And up to 17 million children with pre-existing conditions can’t be denied coverage or charged more. Specifically, in Iowa the healthcare law has allowed over 800,000 Iowans to receive at least one preventive service at no out of pocket cost. (WhiteHouse)

In addition, the healthcare law adds protections for the LGBTQIA (lesbian, gay, bisexual, transgender, queer, intersex, and asexual) community by prohibiting insurance companies from denying LGBTQIA people coverage. The healthcare.gov website has even been designed to help consumers find the health insurances that cover domestic partners. Obamacare also provides access to evidence-based interventions addressing tobacco control, obesity prevention, HIV-related health disparities, better nutrition and physical activity.

As I continue to report, I have Cystinosis and because of living with this terminal illness I visit lots of doctors and hospitals. Thus, I rack up tons of medical bills. I also recently, had a living donor kidney transplant at the University of Iowa Hospitals and Clinics. However, thanks to the Affordable Care Act (Obamacare) insurance companies cannot deny me coverage because of my pre-existing illness and they cannot deny me coverage because of a lifetime cap. In addition, because of the healthcare law my premiums and co-pays are lower and preventive services such as flu shots were free of charge.

#getcoverd2Obamacare is working and is saving lives. The Republicans and conservatives don’t want you to know this because they don’t want to admit that they are wrong and their plans will only hurt the American people but vastly benefit corporations and their CEOs.

I recommend that if you don’t have health insurance or you do but the plan is too costly, then go to the health insurance Marketplace at www.HealthCare.gov and sign up. If you qualify for subsidies or Medicaid it will help you get those.

How Obamacare Helps Me

Jon and me after our surgeries!
Jon and me after our surgeries!

As you all know by now, I am a 22 year old living with Cystinosis and I had a kidney transplant on May 30, 2013 at the University of Iowa Hospitals and Clinics (UIHC). Because of living with Cystinosis  I visit many hospitals and doctor’s offices, thus, I rack up medical bills quickly. However, thanks to the Affordable Care Act (Obamacare), insurance companies cannot place a lifetime cap on my coverage and cannot deny me medical coverage because of having a pre-existing condition. In addition, my copays and premiums are lower this year because of Obamacare and preventive services such as flu shots were available to me free of charge.

The healthcare law (ACA) aka Obamacare adds protections for the LGBTQIA (lesbian, gay, bisexual, transgender, queer, intersex, and asexual) community by prohibiting insurance companies from denying LGBTQIA people coverage. The healthcare.gov website has been designed to help consumers find the health insurances that cover domestic partners. Obamcare also provides access to evidence-based  interventions addressing tobacco control, obesity prevention, HIV-related health disparities, better nutrition and physical activity.


There are some additional ways the ACA or Obamacare is helping Americans:

  • Up to 105 million Americans now can’t be subject to lifetime caps, and I am glad to be part of that number.
  • Up to 17 million children with pre-existing conditions can’t be denied coverage or charged more and beginning next year.
  • Up to 129 million Americans with pre-existing conditions can’t be charged more or denied coverage. 
  • Over 801,000 Iowans have already received at least one preventive service at no out of pocket cost, and I am happy to be part of that number. 

Unfortunately, many Republicans in Congress wish to defund and repeal the Affordable Care Act (Obamacare), they refuse to help young adults such as myself to get the lifesaving healthcare services because they wish to give insurance companies the ability to put lifetime caps on insurance and deny people like me insurance because of pre-existing conditions. Repeal of the ACA (Obamacare) would mean that over 100 million Americans could lose access to medical and preventive services.


Effects of Healthcare Reform (ACA) aka Obamacare


Obama’s election to the presidency in 2008 was because he promised healthcare reform. The president spoke to the majority of Americans whom agree with him that we need healthcare reform. The world economy failed in 2008, most nations have been struggling to stay afloat. In America, we have watched as Healthcare costs have become unmanageable for many Americans. Many Americans no longer have regular checkups. Instead, they would see a doctor in emergency room visits. The nation lost preventive care. Nevertheless, Republicans in the nation believe that the Democrats plan for healthcare reform will not work. While, on the other hand Democrats believe that, the Republicans plan for Healthcare reform will not work. During 2010, our nation had Democratic control of the Executive and the Legislative branches of the government. Thus, our legislative body passed a Healthcare reform bill.

In reality, the healthcare reform law does many things, for instance,“insurers will have-to cover everyone, regardless of preexisting conditions.” This was a major winning point for the Democrats. Another is, “you can live away from the folks and even be married (as long as you’re under 26) and still be on their health-care plan.” The last big winner for the Democrats was that under the new law, “as long as you pay your premiums, it’s illegal for insurers to drop you if you become suddenly, expensively sick” (“Reform School”). With the new rules that healthcare insurances and providers must obey by, “Medicaid coverage will be expanded in 2014 to individuals with incomes at 33 percent of the federal poverty level” (Kim, Majka, Sussman 57).

The new law did get the approval of the Congressional Budget Office (CBO), which is a nonpartisan agency that calculates the official cost of legislation for Congress, speaks in the polite language of actuarial tables, refuses to reliably please either party, and is the closest thing American politics has to an umpire.  One major reason it received approval is for the inclusion of about $500 billion I cuts and reforms to Medicare, and similar amount in new taxes (Klein). Even though the CBO has given its approval of the Healthcare law, Republicans still want to throw out the law.

Some of the reasons why the nation’s Republicans want to repeal the new Healthcare law include, “provisions will require each of us (with minor exceptions) to maintain a minimum level of health insurance, beginning in 2014.” The individual mandate is a huge reason for supporting repeal, for the Republican party whom believes that it should be the individual’s choice whether they want to or not. If individuals do not buy health insurance then “a penalty imposed by the tax code, payable with annual tax returns” (Becker). In addition, by 2014, employers with 50 or more employees will be required to provide coverage on the exchange and receives a subsidy (Pudlowski 40). Republicans believe that this mandate is going to be very harmful to small businesses.

Republicans in the House of Representatives that happen  to be physicians also have teamed up to repeal the new healthcare law because of the new cuts, “ in reimbursement rates to Medicare and Medicaid providers; fees or excise taxes on pharmaceutical companies, medical device manufactures and health insurers; reductions of hospital bad debt; and quality initiatives” (Pudlowski 37). Thus, they are displaying a conflict of interest and only reason they wish to repeal the law is so that their friends can continue to make a profit off of their patients.

tumblr_m6cqwlbVTa1qzhkvho1_500Most Democrats believe that these provisions in the healthcare law, for instance the individual mandate, employer mandate, and the cuts to Medicaid and Medicare are necessary for reform. The Democrats believe that the positive effects, the coverage regardless of preexisting conditions, children being able to stay on their parent’s healthcare plan, and expanding Medicaid coverage will out-weigh the negative effects. This 1,000-page law may not be perfect but it does many great things. In 2014, if the law has not been repealed there will be an additional 47 percent of Americans will be insured. More lives will be saved by preventive care, less emergency room visits, and less bad hospital debt.

Thus, I personally support President Barack Obama’s Affordable Care Act ‘Obamacare,’ because not only will it help reduce the cost of healthcare in the United States it will cover more people and save lives. Nonetheless, I am still a huge proponent for universal healthcare by the passage of H.R. 676, the expand and improve Medicare for all bill. H.R. 676 would institute a single payer healthcare system by expanding and greatly improving Medicare to everyone residing in the United States. H.R. 676 would cover every person for all necessary medical care including prescription drugs, hospital, surgical, outpatient services, primary and preventive care, emergency services, dental (including oral surgery, periodontics, endodontics), mental health, home health, physical therapy, rehabilitation (including substance abuse), vision and correction, hearing services including hearing aids, chiropractic, durable medical equipment, palliative care, podiatric care, and long term care. H.R. 676 ends deductibles and co-pays. H.R. 676 would save hundreds of billions annually by eliminating the high overhead and the profits of the private health insurance industry and HMOs.

For more information on H.R. 676 please visit: H.R. 676