As you already are aware, my name is Mika Jayne Covington.
I am 27 years old (which is an accomplishment in itself because of the cystinosis) and I live with cystinosis. I was diagnosed with cystinosis at around 10 months old. Cystinosis is an ultra-rare genetic disease that causes cells in the body to crystallize and die. Cystinosis slowly destroys the organs in the body especially the kidneys, eyes, liver, lungs, muscles, and brain.
FBD was created to help make the cystinosis journey easier. FBD is a group of adults living with cystinosis who’ve come together to pave a brighter future for the children, teens, and adults touched by our rare disease.
One major project of FBD is their Outreach program that works to connect individuals and build relationships within the cystinosis community.
Along with my participation in FBD, I plan to continue to volunteer and work for progressive political change.
As a transgender person, I plan to continue working to end anti-LGBTQIA+ bias and helping fill the education gap in Iowa on LGBTQIA+ issues and history. I plan to fight for Free College for All, Medicare for All, and transgender equality.
Volunteering on these issues takes time, effort, and money. One example is an upcoming conference with FBD in Philadelphia and I will need to pay for travel. This is just one example of my need for support.
Therefore, I humbly ask you to make a small donation to help further my work on these causes.